Sharing Data: Improving Lives – challenges and solutions in a privacy-sensitive world

Professor David V Ford1

1Swansea University, Singleton Park, Swansea, Wales, UK, SA2 8PP, d.v.ford@swansea.ac.uk

 

The case for sharing data, linking it together, and using it to support policy and service improvement has been made many times.  However, despite the obvious benefits, it happens far more rarely than one might expect.  This talk explores some of the reasons, spoken and unspoken, why this is the case and describes how these challenges have been addressed in Wales’s SAIL DataBank, and describes how carefully designed software platforms, such as the UK’s Secure E-Research Platform (SeRP), can help groups and jurisdictions make progress.

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