Customising REDCap for Clinical Registries
John Liman1 1Monash University, Melbourne, Victoria, Australia
Abstract
Introduction:
Clinical registries are essential for monitoring patient outcomes and improving healthcare quality. However, building a custom software to enable data capture could be a cost prohibitive for many clinical registries. REDCap (Research Electronic Data Capture) is a web-based tool commonly used for building and managing electronic data capture forms and surveys for clinical research studies. REDCap is provided free of charge to Monash University staffs and it allows flexibility for an IT staff to develop customisation to support functions that are not supported by REDCap out of the box.
Actions:
At Monash, we customised the data collection forms and the user interface based on the specific needs of the registry. We also provided support to the registry staff to ensure proper use of the customised features.
Results:
Customising REDCap in clinical registries can improve data quality and registry performance. The customised modules improved the usability and efficiency of the registry, resulting in increased user satisfaction and reduced workload.
Conclusions:
Customising REDCap in clinical registries can have significant benefits for data quality, registry performance, and user satisfaction. The customisation process should be tailored to the specific needs of the registry and should include proper support. However, customization should be done with caution as not all requirements can be met and should have proper support to avoid incompatibility with future REDCap upgrades.
Biography
John is the System Development Team Lead at a Helix, Monash University, which is supporting data-driven research involving sensitive health data. John speciliases in REDCap, which is a tool that supports clinical registries data collection, and John has been helping researchers to design, and customise their REDCap projects to suit their needs.