Discover Clinical Trials Data with Health Data Australia and
the Health Studies Australia National Data Asset and the Queensland Node
Ms Kathy Dallest1, Sara Gottliebsen3, Dr. Hugo Leroux2
1QCIF Ltd, Brisbane, Australia, 2Australian eHealth Research Centre, CSIRO, Brisbane, Australia, 3Health Translation Queensland, Brisbane, Australia
Biography:
https://orcid.org/0000-0003-4109-3146
Kathy Dallest is the Senior Health Informatician in QCIF and is co-leader of the HeSANDA Queensland Node delivering national infrastructure enabling secondary use of health and medical research data. Kathy has a background in nursing and public health and transitioned to Health Informatics in Scotland in the mid 1990s.
Over the past 9 years she has provided expert domain knowledge and guidance to eResearch infrastructure programs, research groups and health services.
Kathy has over 30 years’ experience working with sensitive health and medical data in clinical, research and educational settings with a focus on patient safety, governance, information security, integrity and knowledge generation.
Abstract:
The Queensland node’s primary objective is to catalogue and make available comprehensive metadata related to clinical trials in Queensland. The dataset information is accessible through Health Data Australia and Queensland Node metadata repository Dataverse, which serves as a centralised catalogue for Queensland facilitating the discoverability, searchability, and requestability of clinical trial data for researchers.
Benefits for researchers contributing metadata to HeSANDA: gain increased recognition and visibility for research; extend the life of research; meet responsibilities to share data from publicly funded research projects; facilitate new collaborations; to expand research impact.
Benefits for researchers requesting access to data HeSANDA: inspires new research questions and provides opportunities to build richer and more extensive datasets; provides a systematic and clear mechanism to create new collaborations; reduces research costs and duplication; saves time by collating available clinical data in one place and using a clear pathway to request data; accelerates research discovery.
This poster presentation will explain how health and medical researchers increase the impact of their research by making it discoverable and visible through HeSANDA. We will also explain how researchers can find descriptions and details of health and medical research datasets that could potentially be shared with them, under the right conditions.
Importantly, this poster presentation will highlight to researchers how they can make the most out of the data that participants provide (under the right consent and ethics parameters) by making meaningful contributions to more than one research project. Health consumers have highlighted this is a motivating factor for their participation.